I feel absolutely amazing. I feel healthy and feel that my body is back
to normal. It’s not though as far as my blood counts go. They are still low in
certain areas, but can take up to 2 years to go back to completely normal :-/
That’s ok though because I would never know it by the way I’m feeling. I have a
lot of energy and am able to do everything I was able to do prior to getting
sick. I remember having my transplant and wondering how on earth I was going to
get back to my normal life. Doing anything was so exhausting and then the few
weeks that I was feeling really sick, I was really thinking that I was never
going to feel good enough to do anything. But by the grace of God, he healed
me, and quickly at that! I know a lot of patients still struggle at the point I
am at now, and most definitely wouldn’t be able to care for a toddler all day,
hold down a household, exercise every day, etc. I am so thankful that I am
doing well!
I am down to ONE day a week at the clinic!! That is of course as long
as everything stays stable. I haven’t needed a blood transfusion in months and
hopefully won’t need one here on out, but there is still a possibility because
my blood counts fluctuate so much. I also had some issues with my creatinine
levels and they had me getting fluid every time at clinic, but last week it was
normal so hopefully it stays that way. Life almost feels somewhat normal now
that I’m not at the clinic as much. Going once a week feels like an eternity
between each visit, but I am happy with that!
My sister, who helped more than you can imagine with everything, left
back to Colorado once I reached 100 days. It was bittersweet because I was so
sad to have to leave, but happy that she was able to leave since I have been
doing so well. My mom is still here but leaving for good next weekend. My dad
planned a trip out here for Memorial Day weekend and I thought that would be
the perfect time for them to drive back to Colorado together. That’s how good I
feel. Enough to not need any additional help around here. It has been a God
send to be able to have both my mom and sister here for so long. Having
Londynn, I just don’t know how we would have managed through this all without
them. God really made things almost easy for us….seriously. Sometimes I wonder
how I am so blessed when many people who go through this really struggle, have
no support system, go bankrupt because of all the medical expenses, and yet we
have made it through. It wasn’t easy of course, but I don’t feel that it was
anything like what a lot of patients have to go through. With everything God
brought to us, we made it just fine, and will continue to do so.
At the meeting with my doctor we discussed the immunosuppressant
tapering schedule and pretty much what comes next. I won’t start getting
tapered off the immunosuppressant until 180 days post transplant which is mid
July. Then it’s another 6-8 weeks before I will be fully off the drug and able
to go out in public. Still another 3-4 months but I am patiently waiting and
have already been planning where I want to go out to eat and what I want to do
once I am “free!” That also means I have to wait until then to return to work,
however he cleared me to work from home if I so desire. And that I do, so
much!! I miss work more than ever….I don’t think people understand that until
they can’t work anymore, not by choice. I am just waiting to hear back from my
employer when and if I can. God is good and am faithful it will all work out!
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| LK's new obsession lately. Playing in the car. |
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| LK and her best friend Harper |
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| Snack Time |
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